A Better Day

Today was a way better then yesterday. I took my new med and only half a dose. If it works as well as I think it did today. I will get some of my life back. It also seems to be slowing down the frequency I deal with without a bladder. It’s making me thirsty and allowing me to drink fluids without having to run to the washroom.

If it is doing this, holy cow this would be a dream med for me.

I’m cautiously hopeful.

I was able to go into town and get everything done I needed to today with my Hubby’s help. I ended up with a gut ache but I was able to get out of the house and that is good. We were even able to go out for dinner later in the evening.

It’s a brand new medication on the market so docs and Pharmacists don’t know a lot about it. I guess I’m sort of a guinea pig again. I sure hope I don’t grow a second head or something.

If it does work this well I could see it being life changing for those with crohns/colitis/ibd.

I’ll keep you posted.

I made another change this morning. I didn’t have decaf coffee. I wanted to see if it was making things worse. Tomorrow I will have decaff coffee again and see if there’s any difference.

I love the days that give me some hope but, at the same time I’ve hoped so many times before and they were dashed so that’s why I combine cautious and hopeful in the same sentence.

How was your day?

Good days & Breaking free,

CrankyPants

The first step

Enbrel Box
                           Enbrel Box

I picked up my Enbrel today. That’s the first step to preparing myself to start the injections. Mr. CrankyPants feels it’s best to start on Friday while he’ll be home for the weekend to keep an eye on me. So I guess I can’t put it off any longer. I get a month’s supply at a time.

I have to keep it in the fridge but take it out about a half hour before I stab myself so it won’t hurt so much.

Good times. I’ve given myself needles before, I can do it again. Here’s a picture of the needle pens. I have to use one a week.

 

Enbrel Needle Pens
                      Enbrel Needle Pens

Happy Days & Fun Times,

CrankyPants