Starting Soon

So today I got a bit of surprise in the mail. I was getting candle supplies, so when I opened one of the boxes, my mind didn’t register what I was seeing at first. It didn’t look like candle supplies. It didn’t look like candle supplies because it wasn’t. Well what was it then?!

It’s always fun to get a package via mail but this isn’t the type of package most would want to get. Okay okay I’ll tell you. When you are approved for Enbrel, they send you a free kit. In the kit is a sharps container to dispose of the needles you give yourself once a week. They also send you a case with a small ice pack in it. Enbrel has to be kept cold so the case is for traveling.

Enbrel Kit
              Enbrel Kit

I’m grateful it’s free but it’s reality setting in that I’m about to start another new medication that I hope will help without nightmare side effects. It’s hard to hope to much. I find it hard because I’ve hoped so many times before.

While I’m pretty used to giving myself needles since I had to do intramuscular injections on me for methotrexate, and I had to do subcutaneous injections on me when years ago we went through IVF, I’m always nervous to start. I’ve heard this one can burn. I need to let it warm up to room temperature to help with that before I inject. I’ve always found don’t think, just do it helps me get it done. It’s usually never as bad as your mind thinks it will be hence the “don’t think” part.

I didn’t know this package was coming and I have no idea when the pen needles are coming. I would assume soon. You can bet your ass I looked to see if the needles were included in this package. Can’t say I wasn’t glad they weren’t yet. It will give me a bit more time to work my mind around this next phase.

I would like to video my first injection but my Hubby can’t stand watching me inject. I can’t inject I don’t think and video myself, so no promises made. I will try.

Have you had to give yourself injections for your autoimmune disease? If so how did you do with it?

Sun & Stars,

CrankyPants

 

Advertisements

Not feeling well

I slept in. That was my first clue.

I don’t feel well today.

The fatigue has got me. Pain has got me.

I can hardly walk because my hip doesn’t want to let me. To use my crutches doesn’t work well around the house.

This is the nature of autoimmune disease. It blindsides you constantly. It’s not a total surprise since I was dealing with a very stressful situation this week. In short, we have a nightmare neighbour who causes a lot of trouble and when he’s around it causes me extreme anxiety. He caused trouble this week, which I think has sent me into a flare. Between that and dealing with Dr.’s (I have a phobia of Dr.’s. I know funny given my situation). It would be enough to cause this.

So, today I have to bow to the disease so to speak. I need to allow myself to be tired and rest. I have to try not to feel guilty.

I wonder if my TB test would have anything to do with this too? Hmmm..

The best we can do for ourselves is listen to our body, if we ignore it, it will likely set us back further.

Hope this finds you all having a better day.

Oceans & Mountains,

CrankyPants