Random Thoughts From the Brain of CrankyPants

CrankyPants is exhausted. Or should I say fatigued. Those of you who battle autoimmune disease will know the difference.

Last week was crazy busy, and this week is the same. It’s the beginning of busy season for my business. I did a very intense pitch last week and I will be going into another store with my candles. I’m excited and a bit overwhelmed at the same time.

Tomorrow I’ll be talking with EnLive. The company who makes Enbrel. They called today and I didn’t have time to talk to them. Apparently it’s going to be a half hour conversation. They have to call my Ins. Co. whilst on the phone with me. This should be interesting to see if I my Ins. Co will actually approve Enbrel for me and whether the Enbrel Co. will cover the rest of the cost which is about 20%.

It will be the only way we could afford it.

One difference I’ve found since I’ve been off all the meds is that my hands or all the joints in my hands rather hurt more. I assume the Plaquenil was helping some with the pain, but the trade off was being sick all the time. Hmm..No thanks. It will take three to six months to work but if I get on Enbrel it should take care of that.

It’s actually good to know how much the disease is affecting me and progressed since I started all those meds. It’s chilling really how fast it’s happening. Hopefully Enbrel will also slow the progression.

Do you ever feel like it’s so difficult to keep up with how fast life goes while battling this disease, but you have no choice but to keep up? That’s how I feel. I have no family support aside from my Hubby who works long hours. If I don’t get things done, they won’t get done.

I have a cleaning lady who comes in vacuums and washes the floors for me as a home care service. For that I’m grateful. Other than that, I’m kind of on my own. I think I need a holiday.

Well gotta get to candle making. What do you do to get your focus off the pain?

Candles & Unicorns,

CrankyPants