It’s been an interesting few days. Where to start…
I was emotionally wrecked yesterday crying on and off all day with all the below going on. I was scared because I was so sick.
This is the raw reality of complicated chronic progressive illness, not just for me but for most.
First I saw my GP and he told me that the meds the Rhuemie told me to take for my gut were bad to be on for long. I’ve been on them months. Thanks for that Rheumie. Body can become dependent on them. Doc gave me a new med, a script.
New med, isn’t working, I can’t leave the house, things are bad. Add in it’s in powder form so I have to drink it in water. I also have no bladder. So..Still can’t leave the house even if it was working because of that frequency. I also can’t take it anywhere close to any other meds I’m on. Complicated? Gets better.
I phoned the pharmacy, and talked to them about other options. They said call the Dr. I called the Dr. The Dr.’s office said call the pharmacy and have them fax in my situation, other med options and that I can’t leave the house and hopefully the Dr. will just sign off on whatever they suggest.
Forward to today. NO calls. I just called the pharmacy to find out nothing had been done. I talked in length with the main pharmacist who knew nothing about yesterday. She said because I don’t have an actual diagnosis yet she’s not comfortable recommending anything else. It might not be safe for me. I understand that.
So I’m stuck with this stupid powder that doesn’t work and I can’t leave the house.
Remember how I was supposed to get a call back about a colonoscopy and endoscopy? Well I never did. Things were so bad yesterday that I called the specialist’s office to find out what’s up. They never answer when I call from my home phone but always answer when I call from my cell. The second call was made from my cell. They answered. (This is the Internist’s office). Don’t ask me why I didn’t call the first time from my cell.
I found out that the Internist had sent in the orders for the tests two weeks ago. That’s good, but why did no one call and tell me as they had promised? The secretary said my best bet is to call outpatient at the hospital and ask about it. It will get me noticed and probably booked. I did that and finally got booked. The squeaky wheel gets the grease, but I’m so tired of having to be squeaky.
The secretary at the Internists office said my Internist has been off a month do to burn out. Sigh…our medical system. He was also supposed to be suggesting other med options for my situation today. No call. Am I surprised? No.
Then there’s one doc telling me to do one thing and another saying that thing is bad. My head is spinning. Why can’t all my docs work together?
My GP has no idea that I’m booked for these two scopes and I don’t plan to tell him yet. He didn’t think I needed them yet. The other specialists did.
I got a call back from my GP’s office yesterday with regards to my recent blood work. They said it’s nothing urgent and just a follow up. They don’t call unless something is found. I said to her there’s another test I did that is due in next week. I want to know about that one. Can we wait until that is in to deal with both. She said sure. She then asked if I have any other tests coming up. I told her about the scopes. She said let’s just book the follow up after the scopes and deal with it all in one appointment.
I agreed but then..
I realized I want the results of the test coming in next week sooner if there is anything found. It will give me some answers. Annnd if there is something found, the scopes are the next step. See?
I have the scopes booked in advance guessing it will be the next step.
Feb. 19th and 20th will be the days. I dread the prep on the 19th. As far as the scope I’ve talked with the nurse in detail, and they are going to ensure that I am completely knocked out for the procedures because of my extreme anxiety over medical anything. Otherwise, I’d be heavily drugged but still able to respond and move for them. I told her my fear will override the sedation if I’m even a bit aware. That’s no word of a lie. I’ve had it happen in other situations like the dentist. I don’t freeze or sedate.
The nurse told me I could take Ativan before I come and take more there if I need it while I wait. So that has helped put my mind at ease. The biggest stress is the horrible prep and having to be up all night going through it. I’ll be so glad when it’s over with. I’ll hopefully get some answers.
The good thing is, the day of my prep is a holiday here so I will have Mr. CrankyPants home to look after our dog while I go through this prep. There’s no way I could look after him during it.
Hubby has got a paid day off the day of my scopes so he can drive me there and bring me home. Then look after the dog and I. Phew! That will help a lot. He’s the only one I have up here to help me.
Between calls to and from the doctors, the pharmacy and the hospital yesterday, I was getting confused by the end what I was supposed to talk about and to whom. Then there was the constant washroom trips.
You know what I wish?
I wish I could go even just one month without having to deal with any medical appointments. I need a break.
You really do have to be your own advocate or you get nowhere.
What battles have you had?
Better Days & Twinkly Stars,