I’m Livid…

 

Sept. 28/2018

So I’ve been waiting for a GI appointment for five months now. I was told five months ago that a referral had been sent.

I worked up the courage yesterday to call the GI’s office. They called me back this morning and told me that a referral had never been sent. All this time I’ve been waiting for a call about an appointment.

The specialist that did this has done this before. It’s not the first damn time. Not only that this is the same specialist that took me in a room shut the door and fondled me.

It’s why I asked for a referral to see a GI rather than have to go back to him again. Not that he ever told me I was supposed to follow up. I heard that from one of my specialists out of town.

The very first time I ever saw him, I thought he was great. He was the first one to diagnose me. After that, things went downhill. Four hour wait times past my appointment to see him, disappearing from the room in the middle of an appointment, treating me really bad just before I had my scopes done by him. Mr. CrankyPants was witness to that one. I had my scopes done after the incident as I hadn’t realized what happened wasn’t just an exam. It’s the scope situation and how bad he treated me that gave me the epiphany. You don’t always realize in the moment what’s happening. Call it freezing or shock. It’s hard to put into words. Your brain can’t wrap around the reality of what’s happening. Having been a sexual abuse survivor, my brain just couldn’t cope with it and when it was ready it hit hard.

Not returning phone messages. Or his staff didn’t answer at all. I had been in process of debating whether to report him for the fondling thing. The reason it’s been a tough decision is because it’s not likely much will be done and I’ll be the one going through hell after reporting it. If it does go anywhere, there could be a hearing. We plan to move out of province and if there’s a hearing I’d have to come back for it. The process can take up to a year.They would pay. You all know how hard travel is, not to mention the stress of a hearing. Even with a hearing, if they believe me there’s not much they will do. They’ll watch him but let him keep practicing.

After this and finding out he’s the reason my neighbour died. I’ve decided to report him. Maybe a mark on his record will be enough to stop him from doing it to someone else. Maybe there’s others like me who are too scared to report or have reported.

Really nice how the bad guy’s off the hook whilst their victims suffer basically for life. I already had a fear of Dr.’s that was pretty extreme for reasons I just can’t talk about right now.

Now this Dr. has made things all the worse.

I’m so very tired of fighting with our medical system. They are supposed to take care of us and have our best interests at heart. Sadly it’s very rarely the case anymore.

I’m weary.

Sometimes I feel like saying to hell with it all in regards to my lack of health and just let nature take it’s course. It seems the meds and the medical system are no better than the diseases.

Sorry guys, I’m just so livid today. They’ve pushed me too far.

To end on a positive note, the GI’s office was great. They very obviously dislike the doc that caused all this. They told me exactly what to do to get a referral quickly. I did that. They said they’ll wait for it and get me in asap and they apologized for the other Docs negligence. That was so welcomed in the moment.

I won’t say I didn’t cry with frustration. And I rarely cry.

What would you guys do re reporting or not? Would you get a Lawyer involved?

Rainbows & Sunshine,

CrankyPants

Housekeeping…

As you know, I’ve recently put this blog to a private setting. The reason being that I have somewhat of a stalker. Not dangerous just doesn’t have boundaries.

That being said, with the blog on a private setting maybe I can start blogging about some stuff I otherwise wouldn’t. You know taboo stuff like sex.

Before I do. I want to remind you all that anyone is welcome to do a blog post on this blog. If you have something you need to vent about and don’t want it on your own blog, or you don’t have a blog. My blog is yours too. Just let me know and I’ll hook you up.

Also I have a FB autoimmune disease support group. It’s growing in leaps and bounds and we’re all really enjoying it. If you’re not already a part of it, you’re welcome to be. Feel free to invite anyone you think might be interested in or benefit from it and or this blog. The link is on the side bar of my blog. ———————->

So what topics would you be interested in addressing on here? Not much is off the table as far as this blogger is concerned. I’d love to hear from you.

Sunshine and Green Grass,

CrankyPants

 

Another Long Trip to the Docs…

Mr. CrankyPants and I made the very long 10 hour round trip drive to see two of my specialists in one day plus I had a nerve conduction test done. We wanted to get both docs in so as not to have to make more trips. This was on Tues. Sept. 18/18.

I saw a Neurologist up there for the first time. Thankfully she was amazing. I was seeing her due to a tremor I had. The nerve conduction test was normal thankfully but…

She found I had abnormal reflexes. They were too strong. So..

I now have to have a head and spine MRI done to look for MS. It’s not like I hadn’t thought of this possibility before, but when a doc has concern about it, then it becomes more real.

My second appointment was a follow up with my Rheumie. The Humira is helping me which is good. But (Yes again)…

It’s not helping enough and so technically I need to be taking it more often. Unfortunately I can’t do that right now.

I can’t do that because my Rheumie wonders if the Humira isn’t causing some of my neurological symptoms. So we actually had to make a decision whether or not I continue on Humira whilst I wait for an MRI or not. We decided to continue, because when the Humira starts to wear of the pain gets really bad. So we’re not upping it, just staying on the same dose for now.

Having said that I don’t think that Humira is what’s causing my symptoms and here’s why. When I saw a Neurologist as a kid for my epilepsy, I remember him being concerned about my reflexes back then. I was never on Humira then. Also the cognitive symptoms like struggling to get words out and finishing sentences started when I was on Methotrexate and not on Humira. My Rheumie said she’s heard of mxt causing that but she’s never heard of it continuing for people after they came off of it. I’m always a damn ground breaker.

My memory was bad before Humira and much worse after Methotrexate. So to me, the symptoms don’t line up with taking Humira.

I guess I will find out. Who knows when. The wait for an MRI can be a very long one. I don’t know if they’ll fast track it given my circumstances at all but I don’t hold my breath.

I have to say I really like the Neurologist. She was kind, funny, thorough and really listened. She went through my whole list of concerns. I totally trust her with my care. That’s saying a lot coming from me. I’ve had a lot of bad experiences and I don’t trust many docs. I’m glad that I can trust the one looking after my brain.

My Rheumie on the other hand, I’d love to smack her. She’s giving me the meds I need, but she’s arrogant. She doesn’t like to listen and god forbid you might suggest something to her. Or let her know what you’re not willing to put in your body. I tolerate her for now because I need her. I stood my ground and made sure she listened to and answered all my questions and concerns. I pushed for what I needed whether she liked it or not. It’s too bad though that I had to fight for it. It’s tiring. We were up at 4:30 am to make the long trip there so I was going to make sure she gave me the time of day. And I did.

Word has it they will be bringing a Rheumie into our city once a month again. If that happens and it’s a decent one I will switch so I don’t have to travel anymore or deal with arrogance. (Hopefully).

I’m trying not to think too much about what could come of this MRI, but it’s hard not to be scared. Last year I was given 3 diagnosis in one year and I’ve hardly had time to wrap my head around them, now this.

I’m tired and overwhelmed. And ticked off that we’ve had a lot of snow this Sept. Argh! Having said that things have been so busy, I just keep going.

How are you all doing?

Warmer Days & No Snow,

CrankyPants