Immune Suppressants

Some medications I take.
Immune Suppressants

Can I say ARRRRGGGHHHH?! Well I guess I just did.

These immune suppressants make me so sick. I HATE them. I don’t know how much longer I’m going to be able to stand the one I’m on. I’ve tried Methotrexate, Immuran, now Cellcept. They are making me sicker then the disease.

I feel caught between a rock and a hard place. My Rheumie whom I’m not loving, to put it mildly seems to be blaming me because my body isn’t tolerating the meds. She had me crying after I talked to her last. This Rheumie is all I’ve got. She’s my only hope of getting on biologics and that’s not much hope with her.

It’s such a fine line, between, being seen as compliant and not taking meds that make you sicker.

I honestly don’t know what to do. I can’t take much more of what the meds are doing to me and there is a risk going off them because my kidneys need protecting. They’re not in trouble yet but they are showing signs that they could be. Protein to be a little more blunt.

I worry if I come off these meds that my Rheumie will ditch me. I’ve already been passed around so much, I don’t know where to turn anymore.

Oh and my Rheumie is a 10 hour trip away. The only specialist we have in our area is an Internist and he’s trying to pass me off to the Rheumie.

I’m so done. I’m feeling so lost. We need to move out of here but that won’t happen until spring. That also leaves me very trapped as winters up here are brutal. They don’t take care of the roads. We live on the outskirts of town, it gets dark at 4. I can’t see to drive in the dark, nor will I drive the icy roads.

The Dr.s can sure as hell bite me if they think I’m going to make a 10 hour drive to see them in the winter when there’s technology called teleconferencing. One specialist is willing to utilize this, the other (Ahem the Rheumie) doesn’t seem to be so much. Go figure.

Does anyone else struggle with the medications? Have you been passed from Dr. to Dr? Where you told nothing was wrong when you knew there was something very wrong?

I’m so done fighting with Dr.’s.

I’m sick and tired of being sick and tired.

CrankyPants is a bit Cranky. She apparently is talking in third person too. 😉

Fall colours & Happy days,

CrankyPants

P.S Thank you to all those who joined my blog or dropped by for a visit. I can’t tell you how much I appreciate that.

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